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Follow Up On Parkers G-Tube Consultation
Parker is just a funny kid! Below is a video we took while we were waiting on Dr. St. Peters to come into the room. He was being silly then as soon as I turned on the camera he stopped! Overall March...
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Why Rare Diseases OUR Important
How many times have you been looking for something at your house but you accidentally find something you previously were missing? Wouldn’t it be a shame if the prize you were seeking was within reach...
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Parker’s Surgery Update 3-24-10
What an eventful day. We have been at Children’s Mercy Hospital since 8 am. After getting a DDAVP infusion, dose of Amicar, and a first of the Stults family, a platelet transfusion. Parker was taken...
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Parker’s 2nd Update | Recovery Begins At Home
Just a quick update on Mr. Parker! We were able to come home Thursday evening. The doctors felt comfortable because he wasn’t bleeding which was a main concern before surgery. Parker is very sore and...
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Parker Update | Brisan’s Pre Opp Appointment
Today I took Brisan to his Pre Admissions Testing appointment. I was pleased to see that all of the kinks had been worked out from Parker’s surgery last week. While we were there Brisan was talking a...
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Parker, not a future blogger I suppose?
Well crime scene intact partially… We were up most of the wee hours of the morning with Brisan the “Flinstone Cat” not wanting to sleep and roaming between our bedroom and his. Around 6 am Parker comes...
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Brisan is recovering
So far so good for today for Mr. Brisan. Pretty similar story to Parker’s surgery but today went very smooth per Dr. St. Peter. Brisan had his port-a-cath put in just like Parker did exactly two weeks...
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Video of Brisan and Parker after dinner
I was able to get the “dudes” on the camera last night. Of course they had no interest in what I was doing because one of their favorite cartoons was on, The Penguins of Madagascar! Parker started...
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Parker not doing well
Yesterday was our last day for the NAC drug trial but unfortunately isn’t our last day here. Early yesterday morning both boys started throwing up. They took turns every 15 minutes it felt like. After...
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Recap of Week and IEP Meeting Outcome
Did we say how nice it was to be actually home all week and not traveling? This past Monday Brisan was able to access his port-a-cath for the first time since surgery on April 7, 2010. It was a calm...
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